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Work Smarter with ISAAC

The ISAAC Health Research Information system is a web-based application for administering and managing health research projects/studies and the associated data. ISAAC's easy to use layout allows study personnel to quickly and easily enter and validate (double data enter) study information collected on paper forms, manage users (such as data entry staff), add and update participant ID's and information, and share study data with other researchers by means of data and codebook downloads. "ISAAC functions hold promise for increasing the use of web-based collaborative tools in Autism research."

 

ISAAC's proprietary form management system, called DEFE (Database of Electronic Form Elements), automates the process of developing data entry, data validation, and data edit forms. It also tightly links the online forms to the data tables that store the entered values and the code book that describes the downloaded data. In this way, researchers can be confident that the data they download for use in statistical analysis packages is accurately described in all the related documentation.

Since all data entry, validation and editing is performed via web-based electronic forms, users can be located anywhere in the world and can be processing forms at any time, twenty four hours a day, seven days a week. All data that has been entered is available at any time for download. Data can be initially entered by a user at one site, and immediately validated by another user at another site. The data entry and validation forms also give the user the choice of the number of questions they want to see on a single page, allowing flexibility when entering data from sites with different levels of Internet connectivity.

The revolutionary feature of the ISAAC system is its ability to share entered data between researchers. Principal Investigators can easily designate research data to be made available to other ISAAC users on a multiple levels. They can share all of their data with a particular researcher, or a particular data set with all other researchers. The sharing level is in the complete control of the PI. ISAAC will never share data that has not been specifically registered to do so. It is the hope of the ISAAC team and its funders that eventually all of the data stored within the ISAAC system will be made available to every researcher. It is through this aggregation and collaboration of health research information that new cures and better understandings of health issues will be more quickly advanced.





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ISAAC was founded and funded by
Cure Autism Now